Brenna Bird, Iowa’s Attorney General, issued a cautionary statement today to those who have utilized the genetic testing platform 23andMe. She advised these individuals to swiftly act towards safeguarding their private genetic data due to the firm potentially facing insolvency.
Recently, 23andMe, a well-known provider of consumer genetics and health risk assessments via DNA tests, declared its intention to sell "substantially all of its assets." This move might involve its large database of genetic information.
This action has sparked worries that the firm might sell or hand over Iowans' private genetic data to external parties without obtaining permission from the individuals involved.
As 23andMe faces bankruptcy, Bird stated in a release that Iowans must be aware of ways to prevent their DNA from being commercialized. 'Iowans hold the key to safeguarding their distinctive and important genetic details,' he noted. ‘Through following some straightforward measures, citizens can manage who has access to and utilizes their personal data.’
Bird presented multiple choices for Iowans worried about their personal data, which include the option to remove their accounts, eliminate their test samples, and revoke permission for using their genetic details in studies.
Ways Iowa Residents Can Safeguard Their Information:
1. Delete Your 23andMe Account:
Iowans can ask to have their 23andMe account deleted by going to the company’s account termination webpage. here .
2. Download Your 23andMe Data:
In order to retain a duplicate of their genetic information prior to removal, individuals may sign in to their 23andMe profile, navigate to “Settings,” and obtain their details from the “23andMe Data” segment.
3. Sabotage Your 23andMe Test Sample:
Individuals from Iowa who want to get rid of their saliva specimen can accomplish this by modifying the "Sample Storage" part within their account settings and choosing the option labeled as "Forever delete samples."
4. Revoke Consent for Research:
Participants who originally agreed to use their genetic information for research purposes can modify their choices by visiting the "Research and Product Consents" area within their account settings. They have the option to revoke or alter their consent there.
Attorney General Bird additionally encouraged citizens to stay alert and take swift action to protect their genetic data. To seek further help or lodge a complaint, Iowans may reach out to the Iowa Attorney General’s office via phone at 1-888-777-4590 or submit a complaint through the internet. here .